You are not alone.

An autoimmune diagnosis is the first day of a new life.

There are so many things that suck about life with autoimmune, and I wanted to hear from people who’d been there and found their way to a positive place, most of the time at least. After my diagnosis, I felt so adrift. This was in 2009.

Since then, awareness and understanding of autoimmune has seemingly exploded. But those of us who live with one or more know the big challenges of an often invisible health condition, and the daily uncertainty of how we’re going to feel.

That’s why AutoimmuneMom was born. I hope these words of wisdom help you as much as they helped me, then and now. You are part of a community who gets it, and you’ll always have support here.

This site was originally published in 2012, moved over to Autoimmune.org in 2019, and now back to the original home on AutoimmuneMom.com. This is a collection of stories to read, ingest, and hold onto for hope, support — and the needed nudges to prioritize self care, to pursue the treatments that work for you, and to never, ever give up.

Katie Cleary

Mom to two, patient health advocate, healthcare marketer, and cancer non-profit board member. Love to hike, read, and rest.

I live with autoimmune conditions, and migraines. I’ve had skin cancer, and I’m a breast cancer “previvor”. Like you, always a fighter!

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Paige Bencken

My beloved daughter, artist, potter, writer, college student.

We have her to thank for the rebuilding and relaunch of this website during her summer after high school. Without her, it would have stayed a wish.

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